Sunday, December 5, 2010

I am exhausted but hopeful

I envy my wife. It's 4:33am, she's passed out and I'm still awake and up. It's the same every night. She sleeps soundly while I roam the house in an insomnianic sleep deprived stooper. My body is agitated and rigid so I just took a cocktail of Sinemet and Mirapex. As usual I can't sleep even though I was only able to get about 3 hours of sleep last night. Before going to bed I debated whether or not to stay up and then go to bed late or go to bed and get very early. If I get too much sleep I wake up with a severe migraine and I can kiss the restfulness goodbye. I've been exhausted all day so I went to bed fairly early. I decided to get up at 4:30am. But like so many times before it just didn't work out like I planned. I tossed and turned until I had to get out of bed and do something. So I've been up since. No matter. I'm used to sleepless nights. I've had them since I was a kid, just not like this though. For the most part I had slept ok during my Parkinson's. As it progressed my sleeping worsened. Research now shows that sleep problems may be an early indicator of Parkinson's.
Typically as symptoms progress sleep problems worsen. Pain and uncontrollable movements can cause severe insomnia. At night my uncontrollable movements become worse. I can't seem to force myself to sit still as I type this blog out right now. I can go for days without sleep. Sleep deprivation will set in after so many nights. The shadows seem to come alive making their presence known jumping out from behind a door way or out of a closet. I could almost promise you I've seen the boogey man.
Being quiet isn't hard to do. Everyone sleeps with their door shut. I roam the house making no noise. But I'm like that.
I've tried treating my insomnia for the last ten years with prescription drug, over the counter meds, changing diet, changing schedules, etc. Nothing works. I have Ambien but it makes me do weird things I don't remember, like interacting with dragons, and it doesn't work on me, but I will take one every now and then with hopes that it will work.
The days are long. And I mean 24 hour period of days. I'm awake for both day and night. The days are long because the nights are long.
I stopped trying to seek relief for now. It's only temporary though. Within the last ten years I've tried almost 20 different medications with no positive results. I get either severe side effects or no effects at all. The trial-and-error process of trying to find the right treatment is exhausting. Not to mention aggravating.

So I get to see the sun rise and set almost each day. They are great reminders, simple reminders that have the potential of revealing to us our fragile human nature. The rising and descending sun is likened to our life cycle here on earth. We're born, we grow, we learn, we live, then we die.
It's very easy to get discouraged and negative about life if I let this Parkinson's take control. I refuse to do that.

I am exhausted but hopeful
I am exhausted but hopeful
I took a sleeping pill tonight,
But it didn’t work, so I took another;
Yet here I lay, still pondering the shadows on my wall
I wonder if there’s anyone else like me
I see the back of my eyelids but seldom see sleep
I want to dream but I can never fall asleep
I pretend to be asleep every night but dreams never come
I feel too tired to count sheep
During the day I cope with everything
But at night, Oh these nights
With the darkness, the moon light,
The stillness makes things cultivate
And my emotions no longer hibernate
I feel the tears but do not comprehend them,
Irrational awakening dreams of family, friends
And loved ones, of future and of past
Longing for sunrise, longing for sleep
Longing for the end of this exhausting night
And the darkness of the sky.
I wonder: do the stars sleep at night,
Or do they wait ‘til morning’s first gray light
To lay their heads on downy pillows
And slip into the gentle cradle of dreams?
As I toss and turn, insomnia now my friend,
In the darkness of the night,
I leave my bed, I roam the house,
Look out the window, look at the stillness
But there is none within
For years upon years I've been chasing sleep;
He hides in the house and he starts to creep.
Sometimes in my bed I see him there;
In the corner of the room he stands and stares.
Try to close my eyes to get him out of my sight,
He pulls my eyelids open, "no sleep for you tonight"!
I walk around the house just knowing he's there;
He's plotting his next move and it's too much to bear.
Sometimes he teases me with a quick five second nap,
When he comes out of nowhere with a firm hand slap.
I've finally given up the chase and wait for daylight,
And he sings sarcastically, "you'll never sleep at night"!
I am exhausted but hopeful


  1. Howdy! I know this is somewhat off-topic however I needed to
    ask. Does running a well-established website like yours require
    a large amount of work? I'm completely new to writing a blog however I do write in my journal on a daily basis. I'd like to start a blog so I will be able to
    share my personal experience and views online. Please let me know if you
    have any kind of recommendations or tips for new aspiring bloggers.

    Feel free to visit my web-site - orquesta atraccion

  2. This post offers clear idea in favor of the
    new viewers of blogging, that genuinely how to
    do running a blog.

    My homepage ... casa rural castilla la mancha

  3. Greetings! This is my first comment here so I just
    wanted to give a quick shout out and tell you I
    genuinely enjoy reading through your articles.
    Can you recommend any other blogs/websites/forums that go over the same subjects?

    Appreciate it!

    my web blog - how to get pregnant fast

  4. What's up, for all time i used to check webpage posts here in the early hours in the daylight, for the reason that i enjoy to learn more and more.

    Here is my page; Musicos Artistas

  5. Hello, all is going perfectly here and ofcourse every one is sharing
    facts, that's in fact excellent, keep up writing.

    Here is my web site: musicos artistas

  6. The cut through the maintenance area, and then get really adventurous around
    the fringes. It has to do with parenting than what games he or she plays after school.
    The ambient sound and music with the gongs and everything in
    the background as you travelled mostly alone underground.

    my web blog: dance central 3 xbox 360 review

  7. Gamers can form clans and guilds to play against other players.
    Later on in the year 2557. It is now expected that each Category shall
    have at least 40 distinct artist entries, up from 25. mass effect 2 death mask are also
    a social thing. The player has to take the plunge
    by the lack of excitement surrounding the industry this year.

    Also visit my blog :: mass effect face

  8. I enjoyed reading your article :) PLease continue publishing helpful topics like this. Regards, from beddingstock.



Where my inspiration comes from

A Recycled-Dad with Bipolar & Parkinson's, reflections on fathering and family life and other stuff thrown in'll love my Soap Box Rants

Blog with Integrity\\ Auhor Lupe Picazo

Why I call myself a Recycled Dad

I call myself a Recycled Dad because of the struggles with remarriage and being a step-parent and weekend dad. This is also about my life living with bipolar and how it affects me personally, my family and my job. It also reflects on the grace God has poured out on me throughout recovery from alcohol and an eating disorder. Recycled Dad is about my reflections on the wisdom God teaches daily on fatherhood and being a better husband in spite of being bipolar.

Please feel free to leave comments. I welcome them