Monday, December 27, 2010
The Problems with Forgiveness
Sunday, December 26, 2010
Did I miss Christ this Christmas?
Friday, December 17, 2010
I am an Epistle
An epistle is basically defined as a formal letter. In 2 Corinthians 3:2-3 Paul reveals to us that “we are epistles, written on hearts, known and read by everyone, revealing that we are letters of Christ, being delivered, written not with ink but by the Spirit of the living God, not on stone tablets, but on the tablets of human hearts.”
I have kept a journal for well almost ten years. My initial intentions were to simply keep a recorded log for my children to have of me after I pass on. I wanted to walk them through the worlds that I live in that are so often off limits to outsiders. Verbal words can only express so much, especially to a young child growing up. I wanted to provide them written expressions of myself. When I pass on I want to leave them my words. Words I forgot to say. Words I didn’t say enough. I want the weight off of their shoulders because they know of the depression episodes that sometimes would be accompanied by suicidal thoughts. I want them to know I was inside, behind those blank eyes.
I want them to know it was the mania that they couldn’t move enough for and not me. And that it wasn’t everything thing they did that aggravated me, that it was the mania. When they read my journals I want them to know I did my best and I fought hard so that if there are any resentments for my failures they will know it was the bipolar.
Thursday, December 16, 2010
Caution: Street Signs Out of Order
Change of blog focus
I truly believe that God has given me strength, patience, and grace to deal with my Parkinson's, directly and by what I have learned through the last five years.
So, all that being said, decided to focus my blog on my life experiences with bipolar, my struggles with alcohol, and my tug-o-war battle with anorexia. For as long as I can remember I have dealt with bipolar. Well before being diagnosed.
During the last five years I struggled with alcohol and anorexia. They were my ways of dealing with, coping, and/or avoiding circumstances I was being put through and almost cost me the life I had worked to put back together that I had already lost.
I have a story to tell. A story with chapters. I wrote the first half. Christ is now writing the second half.
Thursday, December 9, 2010
The Tin Woodman, the Tin Woodsman, the Tinman, and Me...
Now I know I've got a heart, 'cause it's breaking |
"For brains do not make one happy, and happiness is the best thing in the world." --The Tin Woodman
He wasn't always The Tin Woodman. As a matter of fact sometimes he was referred to as the Tin Woodsman, but we know him as the Tinman. Before he was the Tinman he was a Munchkin named Nick Chopper, flesh and bone.
Unlike the classic story we all know, the origins of the character are rather gruesome. Nick Chopper made his living chopping down trees in Oz. The Wicked Witch of the East placed a spell on his axe at the request of his fiancée's father preventing him from marrying the girl he loved. The enchanted axe caused Nick to chop off his limbs one by one. Nick replaced each limb with a prosthetic limb made of tin. Eventually, there was nothing left of Nick but tin. The tinsmith, Ku-Klip, who helped him, had forgotten to replace his heart leaving him unable to love the girl he had fallen for. The Tinman is born while Nick Chopper ceased to exist.
We know the story of how the Tinman joins up with Dorothy for her journey to the Emerald City. But what probably 90% of its audience doesn't know is that along the way he proves himself useful by chopping wood to build a bridge or raft and chopping the heads off of threatening animals. Throughout the journey it was the Tinman that was the most compassionate and most protective. Rather than missing his original body of flesh, the Tinman becomes rather proud, rather too proud, of his tin body. Unlike in the movie, in the original published book one hundred years ago, when the party finally received what they were each seeking from the Wizard, the Wizard cut a hole in the Tinman's chest and placed a silk heart stuffed with sawdust, symbolizing to be very soft and tender.
Monday, December 6, 2010
Thank you falettinme be mice elf agin
Sunday, December 5, 2010
I am exhausted but hopeful
I envy my wife. It's 4:33am, she's passed out and I'm still awake and up. It's the same every night. She sleeps soundly while I roam the house in an insomnianic sleep deprived stooper. My body is agitated and rigid so I just took a cocktail of Sinemet and Mirapex. As usual I can't sleep even though I was only able to get about 3 hours of sleep last night. Before going to bed I debated whether or not to stay up and then go to bed late or go to bed and get very early. If I get too much sleep I wake up with a severe migraine and I can kiss the restfulness goodbye. I've been exhausted all day so I went to bed fairly early. I decided to get up at 4:30am. But like so many times before it just didn't work out like I planned. I tossed and turned until I had to get out of bed and do something. So I've been up since. No matter. I'm used to sleepless nights. I've had them since I was a kid, just not like this though. For the most part I had slept ok during my Parkinson's. As it progressed my sleeping worsened. Research now shows that sleep problems may be an early indicator of Parkinson's.
Typically as symptoms progress sleep problems worsen. Pain and uncontrollable movements can cause severe insomnia. At night my uncontrollable movements become worse. I can't seem to force myself to sit still as I type this blog out right now. I can go for days without sleep. Sleep deprivation will set in after so many nights. The shadows seem to come alive making their presence known jumping out from behind a door way or out of a closet. I could almost promise you I've seen the boogey man.
Being quiet isn't hard to do. Everyone sleeps with their door shut. I roam the house making no noise. But I'm like that.
I've tried treating my insomnia for the last ten years with prescription drug, over the counter meds, changing diet, changing schedules, etc. Nothing works. I have Ambien but it makes me do weird things I don't remember, like interacting with dragons, and it doesn't work on me, but I will take one every now and then with hopes that it will work.
The days are long. And I mean 24 hour period of days. I'm awake for both day and night. The days are long because the nights are long.
I stopped trying to seek relief for now. It's only temporary though. Within the last ten years I've tried almost 20 different medications with no positive results. I get either severe side effects or no effects at all. The trial-and-error process of trying to find the right treatment is exhausting. Not to mention aggravating.
Tuesday, November 30, 2010
Ranting in the Calm
Say, "CHEESE!"
"Smile Lupe! Why don't you ever smile? Why do you always look so sad? You should smile more." These are just some of the advice I'm privileged to receive from those who have my well-being in "their" best interest. "I should what?" "And why do you care?" "Thank you for reminding me of the progression of my Parkinson's. You will have to forgive me that it displeases you."
I mean really, who do people think they are that they feel the need to tell others how to carry themselves? I don't tell people who have gained weight, "Wow, you need to go on a diet; I don't like what I see."
Anyone who knows even the slightest bit about Parkinson's knows its cardinal signs: Tremor and Shuffling. However, the many other motor symptoms are not as well known, such as the lack of the automatic ability for facial expressions also known as hympomimia, or masked face. It's a flat affect. The upper lip is rigid and is difficult to move. Less blinking. The face looks, well, just flat...expressionless. Most of the time I sound like I'm drunk when I speak. My speach is slurred. My voice is low. Not so bad when meds are working well.
And I would go so far as to say this makes some people uncomfortable. And for some downright nosy.Being able to multi-task is all but lost as Parkinson's progresses. You know the ability to walk and chew gum at the same time? I've always had a stoic face. I can smile and I can laugh, when the circumstances call for it. I just don't walk around with a goofy grin
on my face. I can smile and I can walk, I just can't do both at the same time.
Sunday, November 28, 2010
It Wasn't Raining When Noah Built The Ark
No, it wasn't raining nor had it ever rained before. Just like Noah didn't know what to expect once he completed the ark, a day in the life of a person with Parkinson's is unknown. With the fear of sounding sorry for myself, my days have come to be ruled by constant planning ahead never knowning what I will be facing. Quite the contrary of feeling sorry, it is so constant by now it has already become a way of life that has given me the grace to appreciate what God has entrusted me with.
I was 29 when my first symptom showed up, a slight tremor in my right hand. That was 7 years ago. For the most part of 6 of those years the extent my symptoms progressed was a tremor that developed in to my left hand and bottom jaw. Now in this previous year I became completely symptomatic. Part of my current treatment is an attempt to slow it's progression.
How My Nonsense Makes Sense
I like nonsense,it wakes up the brain cells. It breaks up the mundane and seriousness of life.
So many roles too fulfill. No games to play. Grad school, work, husband, and father...step-kids live here and my kids are with their mother miles away except for visitations. Weekly schedules of work and homework. Daily routines of helping with 5th grade homework. Communicating back and forth with my ex-wife to care for our kids. Both sets can be a worthwhile handful. Sometimes it feels as if I have two families. Then there is my own health...the symptoms, the pills. But for whatever reason I can be childlike, whether by design or natural. If things start happening, I don't worry, I don't stew, I just go right along and I'll start happening too. Oh, I'm not complaining either. I'm blessed. I know where I've been brought out of.
After my kids reached an age where they began to play using their imaginations I began to realize that fantasy is a necessary ingredient in living, it's a way of looking at life through the wrong end of a telescope to see those things that we've allowed to be obstructed by our serious and responsible daily lives. Fantasy can be harmless child's play. We miss the best things if we keep our eyes shut.